Saturday, September 20, 2008

Life is wht happens to you while you're busy making other plans

Well, For those of youwho don't know, on July 28th I had a hemhorragicstroke . which left me without the use of my left arm and legand had to have a craniotomy on the 29th. . they * thought* I had Lymphoma,but results were inconclusive. so they sent the biopsy to M.D. Anderson,And A couploof weeks later it came back as"somekind of lymphoma"..Turns out it's Non- hodgkinsymphoma of the brain which is just a fancy way of saying a fairlytreatable brain cancer. after a while,II got transfered to a new location for my chemobecause no regular oncologists wanted to treat me having HIVon top of it. after two rounds of chemo, I went to my 4th hospital for b.rehab. .So far things are. going reptty well. I've done more intwo dayshere than in the past tmonth and a half at the other host.All tew therapists are veryy nice and not ibconsiderste task masters like some I've accomplished more in a couple of days here than I did in a month and a half at the first three hospitals. Of course they actually knowt hings here instead of the other therapistwho seemed like they were working from an introduction to basic therapy bookletThe first few after the srokeweeks were preetty hard. Lots of"wfhy did this

happen whenI thought my HIV therapy was going so well.but then I realised that this happened because my HIV had progressed so farand I decided like the whole Patient/victim post said. It's m,y faultthatI have HI,V so I don't have any right to complain or feel sorry for myself. That realisation reduced the mount of crying quite a
bit.
I still have my sad breakdown moments: usually when I don't get enough sleep., or towards the end of the week B has been so wonderful through all of this. He always helps when I have an accident and never complainsHe always gets me in theweheel chair and tries to get me outside for a bit in the morningsI'm so greatful to have hadhim there the night of my stroke: IIf he hadn't been there, who knows how long I would hav been unconcious eand I probably
wouldn't have gotten 911 called

Anyway, back to the theme I tried to set with my title, Before all this, B and I were planning a trip to London in the spring and I was starting to try practicing again to see if I could get back in shape to play in public again.I wanted to do one or two more recItals before I developed full- blown AIDS, or got seriously sickTeaching is on hold indefinitely, uill I atleaststart to get some hand movement back