Thursday, September 24, 2009

Progress

My visit with Dr C went well today.. My Viral load is still undetectable and my CD4 had a significant increase of 21, from 71 to 92, much better than the 2 point increase from 69 to 71 last time. still not the highest jump I've had, but I was worried after the last visit that it was slowning down. I had a flu and tetanus shots. and will get a shot for ze flu-de-swine when it becomes available. I'm also off the Azithromycin since my CD4 is stronger. I'm still on the Bactrim, which is fine because it doesn't do anything to me unlike the Azithromycin which can give npredisctable diarrhea. so I'm VERY glad to be off the "poo pill"

next visit in three months again.

Tuesday, September 15, 2009

a follower!

I noticed a while back that I have someone following my blog. I thought I could send them a message but I on't seem to be able to. if you're the follower, would you e-mail me? I want to know more about you and how you came across my blog and why you decided to follow me

use this address: kasparguy@gmail.com
This is the address I use for spam so I don't check it often, but I will check it when I'm expecting/hping for e-mail.

BLAH!

Can't sleep as usual.. Have another MRI early in the morning. get to have another IV line put in my arm just so they can draw a tiny blood sample to see that my kidneys are in fact there and working and then inject the conttrast part way through the scan.. :-(Then later this week ( probably Wednesday or Thursday I have to go get my blood drawn for my next set of labs for my appointment with Dr. C next week. Hardly ever having to get stuck lately makes getting stuc hurt alot more.. When I was having blood drawn several times a week, a stick here andthere was nothing. but geez, when they stuck the IV for my last MRI I thought my arm was going to explode from the pain. I don't know why IVs have to hurt so much more than just a needle to draw blood.
Friday morning, also fairly early is my third round of Botox. (several more injections in my bad arminstead of my good arm)
I shold stop calling it my "bad" arm. B and one of my therapists et mad at me every time I call it that.. but that's what it is.. my good arm works and my bad arm doesn't... you don't call a dead light bulb on a string of Christmas lights a bulb that "just needs to be woken up." It's the "bad bulb"
B and I are increasingly dissatisfied with the place we moved to for my therapy.. the OT really doesn't seem to kno what she's doing or how to handle my case. But we really don't know where else to go.. The therapists at the old place seem to know nothing of other therapy places... or we think they pretend not to know anything to protect business. It's like a mechanic isn't going to turn to a customer and say, " Why don'tyou take your car to So-and-so.. he's a good mechanic."

I'm giving up on the idea of teaching from home... It's just impossible to get parents to drive more than the five minutes to school for lessons. B only has one student that's coming to thr house and even they want lessons t the school if he ends up teaching any there.
I'm afraid I'm going to have to break down and try teaching at the school for a couple of weeks or so and see if I can even handle it.

Thtat's enough bitching and moaning for this morning. I suppose I shall try to go back to bed since we have to leave for my MRI in about 3 hours.